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Learning trip to the Ernst Lehnhardt CI Center in Gustrow, Germany

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The plan was to make the trip to the Gustrow CIC the previous year, but only this year it all finally fell together. We were very keen to see the work of the rehabilitation center from the inside, discuss various topics and find the answers to numerous questions.

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Little Aydina’s big story

The German journal Hörpäd recently published Monika Lehnhardt’s article about Aydina Bekbulatova from Bishkek, who received her CI in St. Poelten in Austria. By the way, the article also features our speakers Dr. Astrid Wolf-Magele and Dr. Prof. Georg Sprinzl, who helped Aydina enter the world of sound. We are in constant contact with the Bekbulatovs, and are happy to witness Aydina’s first progress as a hearing person.

Here is Aydina’s story in German: http://www.lehnhardt-stiftung.org/en/2014/eine-grose-geschichte-der-kleinen-ajdina/

10 signs of hearing loss

Just look at this fantastic overview of the 10 signs of hearing loss. What could they be?

1. The child does not startle at loud noises.
2. She does not turn to the source of a sound after 6 months of age.
3. Does not say single words, such as “dada” or “mama” by 1 year of age.
4. Turns head when he or she sees you but not if you only call out his or her name. This sometimes is mistaken for not paying attention or just ignoring, but could be the result of a partial or complete hearing loss.
5. Seems to hear some sounds but not others.
6. Complains of ringing noise in her ears (a sign of tinnitus).
7. Speech is not clear.
8. Does not follow directions. This sometimes is mistaken for not paying attention or just ignoring, but could be the result of a partial or complete hearing loss.
9. Often says, “Huh?”
10. Turns the TV volume up too high.

For the full article:

http://idiva.com/news-iparenting/doc-talk-10-signs-of-hearing-loss-in-kids/29216

New insights into Meniere’s disease

Science Daily reports:

In the most comprehensive study of Ménière’s Disease to date, researchers have been able to suggest what goes wrong in the body when people develop the disease, and provide an insight into factors that lead to its development. The analysis also showed that Ménière’s patients were more likely to suffer falls and mental health problems, such as depression, than people without the condition.

To find out more: http://www.sciencedaily.com/releases/2014/04/140415203817.htm

Handy – Useful Information

Know your upgrade potential!

We have found this useful table to show you which implant is compatible with which processor – this is your potential pathway to upgrading!

ATT00007

Majority of Cochlear™ Nucleus® 6 study participants prefer the fully automatic SmartSound® iQ “SCAN” processing

A group of 30 experienced adult Cochlear™ Nucleus® 5 users has been converted to Cochlear Nucleus 6 Sound Processors. After three months experience with Nucleus 6, the group showed increased hearing performance in noise, preference for the automatic SCAN programme and a high level of satisfaction with the ease of use – in particular with the new small Nucleus 6 Remote Control (CR210).
In case you want to learn more about the advantages of Nucleus 6 please contact : info@monsana.ch

PORA! workshops in 2014 – Meeting the Cochlear Implant Fitting Expert

Dear followers and friends of the PORA! community, Dear parents! Today we are pleased to be announcing a new series of workshops named ‘Expert workshops and online consultations on cochlear implant fitting’.

This new Project initiated by Dr. Monika Lehnhardt (Prof. Ernst Lehnhardt Foundation) in cooperation with the University Medical Center of Freiburg and the Freiburg Cochlear Implant Center is designed to give you access to the newest fitting and rehabilitation methods, as well as provide the option of individual counseling.

We welcome parents and experts to meetings with German and Russian-speaking expert Alex Teichrieb, who will present on the Freiburg CI center: its history, departments, methods and meeting the needs of recipients (children, parents, adults and seniors) for fitting and rehabilitation after a CI. This webinar is set to be the first of the planned monthly meetings with Mr. Teichrieb.

The ENT department of the Freiburg University Clinic has been using cochlear implants since 1993. Deaf children are normally operated on at the age of 10-14 months. Hearing-imapired adults can also be eligible for a CI. “Every year we have 200 to 250 new patients, who receive lifelong care with us”, says implanting surgeon Prof. Laszig. Technicians, SLPs are other experts work in an intense and meticulous way, especially with children who had had no previous experience with sound. To date, more than 2000 cochlear implantations have been carried out in Freiburg.

“We see the personality of a hard of hearing or deaf person in a holistic way. The guiding principle of a Freiburg rehabilitation is to provide a CI recipient with an opportunity for their best hearing, so that they achieve free speech understanding in all the daily hearing situations. One must be active in all day to day  scenarios where hearing is required. Our vantage point is the individual capacity of each personality, and our therapy accounts for social and cultural contexts. Involving the family into the treatment is a substantial part of the rehabilitation. We would like to meet the needs of everyone who entrusts us with their care. Naturally, the attitude to patients is a respectful and amicable one. Our work as professionals is transparent for the recipient; therefore, this facilitates a sense of responsibility for one’s therapy outcome’. Photo source: Freiburg CI center official website.

www.uniklinik-freiburg.de/icf/live/index.html

Our webinar on October 10th a success with the international audience

We are very pleased to let you know that our first PORA! webinar of this academic year has attracted an audience of almost 70 participants from 9 countries.

One of the largest delegations joined our online assembly from Yerevan, the State Pedagogical University being represented by 25 members of staff. With help of our team member Lilit Abrahamyan, we have the following feedback from Armenia:

Online Webinar with the Participation of Special Pedagogues 17.10.2013

Recently, the professorial teaching staff of the Department of Special Education and MA students of the Division of Surdo-pedagogy participated in the first session of PORA webinar series conducted by Lehnhardt Academy.

The live seminar initiated by Inessa Harutyunyan, Assistant Professor at the Dept. of Special Pedagogy and Psychology, Candidate of Pedagogical Sciences, was also attended by the specialists of “Erebouni” Medical Center and School for Children with Hearing Impairments.

George Tavartkiladze, Founding Director of Russian National Research Center for Audiology and Hearing Rehabilitation, Doctor of Medicine (M.D.), lectured on “Functional Anatomy and Physiology of the Auditory System.”

There were 70 participants, specialists and parents from Russia, Germany, United States, Kazakhstan, Mozambique, Ukraine, Azerbaijan and Belarus in the webinar.

At the end of the meeting, the parties reached a consensus to actively participate in forthcoming webinars of the Academy.

Joanna Kosmalowa answers the questions of experts and parents in the webinar on Parent Counseling on 23.06.2013

[Olga Peskova – Dallas] There are different views on what to advise parents outside the living room, that is, in everyday life. Many suggest taking more time to relax, and devoting time to oneself as well, in order to better cope with all the difficulties. What would you say?

For sure. We discuss this not just during therapy sessions, but in the support groups as well. What strikes a keynote is the thoughts and feelings of the parents, particularly of the child’s mother. Consider how she perceives her child, and how much time she judges necessary just for herself.
Together we discuss daily schedules, try to give time frames to activities, to see whether there is a period that the mother can devote to her own agenda. The time needed for daily chores matters, too.
Having suggested a certain strategy, in the next meeting we see how effective it proved to be. For example, you could try to secure a time in the afternoon when you can drink tea or enjoy a book, with the children not immediately by your side. A support group meeting is finalized with a ‘do something for yourself’ home assignment. Every group member says what they are planning, and in the next meeting they recount whether they were successful or not. Not everything can be achieved in one attempt, but for stay-at-home mothers this matters very much, and proves beneficial.

[Jana Frey_Berlin] How can this topic be presented best; do you teach it to experts? Which seminars do you conduct?

We organize various seeminars for experts and parents: communication, advocacy for self and child, and work on  self-image. The duration of one such seminar is around 6-8 hours over one or two days. The groups can be around 12 large. Attention is also given to family counseling regarding relations between the parents, because this also impacts the child, whether hearing-impaired or not.

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